5 Hawkings = reported, published evidence of strong effectiveness with treating ailments or slowing down the spread of symptoms.
4 Hawkings = reported, published evidence of moderate effectiveness with treating ailments or slowing down the spread of symptoms.
3 Hawkings = non-published evidence with treating ailments or slowing down the spread of symptoms.
3* Hawkings = conflicted reports of effectiveness evidence with treating ailments or slowing down the spread of symptoms.
2 Hawkings = reported, published evidence of non-effectiveness with treating ailments or slowing down the spread of symptoms.
1 Hawkings = no proven effectiveness/damaging to ALS
Cleveland Clinic's ALS floor
Dr. Erik Pioro Director, Section of ALS & Related Disorders at Cleveland Clinic 9500 Euclid Ave #S90, Cleveland, OH 44195 (216) 445-2988
As of 2019, Cleveland Clinic officially is not supporting medical marijuanan, even though it was cleared for ALS in Ohio. Due to this, doctors may not write prescriptions. That said, they are able to alert their patients to this. While Cleveland Cling phsycicans mention that medical marijuana may help ALS survivors, the ALS Clinic at Cleveland Clinic refused to provide any information on cannabis support for ALS patients. Instead, they pushed muscle relaxers.
In September 2018, they hired a new social worker, but this person only works one day a week. The clinic has no research or support for cures and is only invested in longitudinal studies on dementia (intergenerationally). When Dr. Jerryson was diagnosed with ALS, he was told he was told he had either less than a year to live, five years, or twenty+ years (but when asked about the 20+ years, Dr. Pioro said this scenario was unlikely for Dr. Jerryson). Following this traumatic diagnosis, he suggested for Dr. Jerryson to get in touch with ALS Association for support and was ushered out the door.
While Dr. Erik Pioro is very knowledgeable about ALS and has been at the forefront of evaluating potential cures, he does know have a knowlegable or supportive staff. Quite a few ALS survivors in Northeast Ohio have complained about the Cleveland Clinic ALS Clinic. They are excellent at diagnosis, but very poor in terms of support.
For over 150 years, the medical field has struggled to identify the causes of ALS. While there are many agencies and international companies promoting products like Riluzole and Radicava, what has been mostly absent has been collective ALS survivors’ feedback on these products.
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Did you have had a bad experience? Did your physician treat you poorly, did their questions traumatize you? Did the medicine they give you provide you with problems (such as Riluzole, which can elevate people’s liver enzymes)?
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Thank you for your help to improve the awareness and knowledge of what helps ALS survivors.